During the Ignition study, we asked young people with cerebral palsy, their families and health professionals how to improve the process of moving from child to adult health services in Ireland. Many people told us that they were unable to find information about health services that adults with cerebral palsy can access after they moved from child services. They thought that having a list of services would improve the process of moving from child to adult health services.
We are therefore aiming to create a map of available services for adults (18 years and older) with cerebral palsy in Ireland. To do this, we have created an anonymous online survey to gather the information that we need to create the map.
We are initially asking a small number of adults with cerebral palsy, family members of adults with cerebral palsy, and people who provide services to adults with cerebral palsy to complete the survey. We will ask for their feedback on the survey so that we can improve it. We will verify services by checking details online and asking organisations that provide the services for more information. If it seems possible to collect and verify information about services, we will conduct a larger study to create a comprehensive map of services for adults with cerebral palsy in Ireland.
This research is being conducted by researchers in the Royal College of Surgeons in Ireland (RCSI) and is funded by the Health Research Board (HRB).